Living with lipedema

The diagnosis of lipedema changes the lives of many affected women. Problems and restrictions in daily life occur. But once the condition has been diagnosed, tricks and therapies tailored specifically to you can be used to make life with lipedema as comfortable as possible.

Here you will find some tips and concepts for dealing with lipedema, as well as contact points for further information and assistance. We would also be happy to advise you personally.

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Experience with lipedema

Many patients are diagnosed with lipedema only after many years. By then, most of those affected have already gone through a long period of suffering. Lack of understanding on the part of those around them – lipedema and obesity are often confused with each other – and a lack of trust in doctors drain the self-confidence of many a woman. The feeling of being left alone and sometimes also the shame about one’s own body often represent a great psychological burden.

In addition, there are considerable complaints and problems in everyday life, among others:

  • Pain
  • Swelling
  • Sensitivity to pressure
  • Feeling of heaviness in the arms and legs
  • Cold sensation in the fatty tissue
  • Restrictions in freedom of movement
  • Problems with the choice of clothes
  • Psychological stress (caused by physical limitations and changing one’s own aesthetics)

But you should know one thing: You are not alone!

An important contribution to dealing with the disease lipedema is provided by personal blogs of those affected. There they share their experiences and tell what they have learned over time. Such first-hand information is especially important for women who have just been diagnosed. In this way, patients support each other and experience, often for the first time, that they are not alone with their disease. We would particularly like to recommend the following blogs to you:


Lipedema self-help groups offer support

Patients can deal with the topic of lipedema in a variety of ways and obtain information about it. In addition to the specialist, you can also find advice and help in self-help groups that hold regular meetings.

A great place to go first for information about lipedema is Lipödem Hilfe Deutschland e. V. The website tells you everything you need to know about the condition. You will also find a list of current articles from print media and television as well as a helpful list of links.

The Lymphnetz Munich provides names and addresses of doctors and lymph therapists who specialise in lipedema. In addition, you will find pharmacies and medical supply stores that deal specifically with this condition.

Of course, our LIPOCURA® experts will also gladly help you find a suitable self-help group and other helpful information.

Tips to increase the quality of life with lipedema

Whether sports, compression garments or nutrition: many tips help you to deal confidently with the disease lipedema. For example, the right diet can have a positive effect and with the right type of sport you can work out with like-minded people.


Lipedema and sport

Unfortunately, sports do not offer a cure for the disease lipedema. Nevertheless, you should include sporting activity in your daily routine. After all, if you do physical exercise, you are not only doing something for your figure, but also for your mind through the release of endorphins. Sport can put us in high spirits and simply push dull thoughts to the side. In addition, sporting activities also reduce the accompanying obesity that occurs in many patients. This means that sports are also part of the optimal preparation for surgery.

Above all, water sports such as aqua gymnastics, aqua spinning or swimming are particularly recommended as lipedema sports. The increased pressure in the water results in natural compression, which is more even and more pleasant for many patients than classic lymphatic drainage.


Lipedema and clothing

Many lipedema patients find it difficult to find something to wear. In general, look for flowing and easy-falling fabrics that flatter your figure and feel good. Avoid clothes that are too tight, cut in and are uncomfortable.

Self-help groups are also a good source of inspiration for fashion tips, as sufferers regularly share their experiences here.

When it comes to compression garments, the right fit is particularly important. Seen from the hand or foot, the compression pressure must weaken towards the heart. If this is not the case, the edema in the arms and legs will become even more prominent. Regularly wearing custom-made compression stockings reduces swelling.

Lipedema and the psyche

The physical pain of lipedema sufferers is often accompanied by psychological pain. The initially seemingly unstoppable change in the body, coupled with a lack of understanding by those around them, their own dissatisfaction with their appearance and probably shame and self-doubt. Many women report a feeling of alienation from their own bodies, the feeling of not being “normal” and social isolation.

Set boundaries here! Learn to protect yourself from negative influences, be it overly critical friends or social media that promote unrealistic body images – here you can find support from other lipedema fighters. Furthermore, an active lifestyle with exercise can also help lift your mood and self-esteem. Listen to your body image and try meditation to take the focus away from negative thoughts. Anything that feels good and does not worsen symptoms (both mental and physical) is allowed!

Lipedema and diet

Although lipedema is definitely not caused by obesity, it can be a side effect of the disease. If you pay attention to a healthy and balanced diet, you can do a lot for a beautiful figure and improve your well-being. Even though there are no specific dietary recommendations for lipedema patients, it is worthwhile to follow a few helpful tips.

Mediterranean mixed diet

Try to eat a Mediterranean diet that includes fruits, vegetables, nuts, olive oil, legumes, fish and lean red meat. Moderate consumption of alcohol is also allowed.


Low-carb, ketogenic diet

Lipedema is often associated with obesity. Therefore, a low-carb diet is ideal for lipedema patients. In close cooperation with Foodpunk, Dr Lossagk has developed a special nutrition programme that provides the best support both before and after lipedema surgery.

Get personal advice


Alkaline diet

This type of diet consists mainly of alkaline-forming foods. This means that the emphasis is on fruits, vegetables, seeds and nuts.


Omega-3 fatty acids

Essential fatty acids such as omega-3 have a positive effect on inflammatory processes in the body, as they reduce inflammation. Therefore, you should consume them regularly (e.g. in the form of fatty fish like mackerel). Omega-3 fatty acids also reduce the risk of obesity and improve the body’s insulin response by stimulating leptin.


Turmeric drinks

Since many of our patients have reported the positive effects of turmeric, we as a team have tested the golden milk and are enthusiastic about it. That is why we now offer turmeric as a drink when you visit our practice.

The recipe for the healthy drink is available here:

  • 5–7 g turmeric
  • 2 grinds of pepper
  • some coconut oil at your discretion
  • a glass full of orange juice (100% direct juice)

In connection with the lipedema condition, many patients report that turmeric helps them with pain management because it inhibits inflammatory processes in the body and boosts metabolism. Turmeric is also said to be helpful in stabilising hormones. However, turmeric should not be taken for at least two weeks before any surgery!

Just contact us if you would like to try turmeric. We will be happy to help.


Some foods are taboo

In particular, avoid processed meat, refined carbohydrates and full-fat dairy products.

Omega-6 fatty acids such as soya bean and safflower oil can promote inflammation and are better avoided.
Also avoid foods with a high glycaemic index such as potatoes, rice, sugar and milled cereals. Weight loss is easier with foods that have a low glycaemic load. You should also avoid alcohol altogether, if possible.


Further information about lipedema

No matter what is on your mind: We are lipedema specialists and are here to help and advise you. At LIPOCURA®, you get the support you need – and deserve! In addition to detailed information on the causes, symptoms, stages and diagnosis of lipedema – visit our What is lipedema? -, we’ll give you a detailed look at lipedema treatment, consisting of conservative therapy and liposuction.

Contact us and make an appointment – we look forward to seeing you!

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